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| Issue No. 19, February 2009
Search Me! You Said It: Your favorite articles in 2008 Ten Things Every Child with Autism Wishes You Knew A Readers’ Favorite: Three Little Words Valentine’s Day will come and go this year, and will make twenty-something times I will not have received a Valentine from my husband. He has a long-standing allergy to what he calls “commercially mandated” holidays, declaring that he doesn’t “need Hallmark to tell me how and when to love my wife.” And I don’t care because 365 days a year, he shows his love in dozens of ways. It isn’t that I don’t care about hearing those “three little words.” Who doesn’t? My son Bryce has autism, and when he was young and only minimally verbal, I had my blue moments wondering if I might never hear “I love you” from him. But when the day finally did come – oh my! Those three little words were not whispered in my ear or crayoned on a card, but announced at a school assembly. The students were supposed to describe themselves as a dictionary entry with three definitions. The typical definitions were along the lines of soccer player, math whiz, love to draw, etc. Bryce’s definition of himself was “someone who loves my parents.” It was, of course, a moment that completely redefined the word “unforgettable.” When a child struggles with verbal language, social communication or emotional issues as many children do, it gives new meaning to old clichés like “actions speak louder than words” and “a picture is worth a thousand words.” We may shower our kids daily – hourly! – with the words “I love you,” but after all, the glory of love is its infinite abstraction. We can’t assume that children will ascribe the same meaning to the word as we do, no matter how often they hear it. The good thing about growing older is that your kids grow older too. One day they emerge from childhood and pre-adolescence (“pukey pubes” as one friend good-naturedly calls them) and, rather than telling you all that you do wrong, they begin to tell you everything that you did right. My son Connor is 21 now and Bryce is nearing 17, and they tell me that although they certainly heard those three little words “I love you” from me ad nauseum, it was a number of other three-word phrases and the actions that accompanied them that really imprinted the I-love-you message on their hearts. “I’ll be there.” At the hoary age of 11, Connor got up at his grandfather’s funeral and told 200 people that his “Grandpa was all about devotion. He was at every baseball game, every birthday party.” He’ll be able to say the same thing about us when the time comes. To us it was the most natural thing in the world, not an imposition at all, that we would be at every ball game, every swim meet, every Halloween parade, every school performance, art show and parent conference. Also for every nasty doctor appointment, call from the principal, broken window and broken heart. I’m sure we put in thousands upon thousands of hours being there, but those years flew by and what we are left with now is kids who may not remember their bygone teammates or birthday presents or illnesses, but do remember that their parents were always, always there for them. “I was wrong.” So many people find it terribly difficult to say these three little words, and yet nothing is more loving than giving your children the gift of being content with their own humanity. By freely admitting when you are wrong, you are modeling strength, grace and humility. These are learned skills that we cannot assume will come naturally to our children. For some children, all errors come in only one size: colossal! By freely admitting when I was wrong (which was frequently), my children learned that, not only will the world not come to an end with such an admission, but that trying again and/or making amends can feel great... Read more ways to say “I love you” in the full article here. On My Soapbox: A 300-Calorie Mixed Message Chocolate Peanut Butter Dream Bars! Got your attention, didn’t it? So would the photograph on the cover of the January 2009 issue of Family Circle. One blogger called it a “full- cover porno dessert.” A half-foot tall image of two brownies topped with cream cheese filling topped with chocolate frosting topped with whipped cream, topped with nuts and chopped peanut butter cups, waterfalls of caramel sauce oozing down the sides. According to the recipe, a 1.5-inch square of this Jezebel of a dessert packs over 300 calories and 20 grams of fat. And that’s OK. Except for the coverline under the come-hither confection: WALK OFF THE WEIGHT. Right. A rather poignant news piece here a couple of years ago polled graduating seniors and asked them what they wished they had learned in high school but hadn’t. The most common response was “life skills” (cooking, handling money, fixing cars, etc.) but close behind was “interpersonal communication skills,” especially the kind needed to determine when they were being conned by marketers, politicians and workplace associates. It’s really important to spot mixed messages in the media and within relationships and point them out to our kids, relentlessly. Learning to distinguish manipulations, contradictions or non-sequiturs is bedeviling for everyone, and exponentially more so for children with autism. In our house, we talked about the obscene dessert with the caption that implies that you can bliss out on these brownies-on-steroids and stroll the effects away. Fourth-grade math tells us otherwise: at 100 calories burned per mile, you’ll have to cover three miles for the moment-on-the-lips just one of these brownies packs. Is it worth it? Maybe, maybe not. But it should be a conscious decision made in light of facts, not seductive photos with misleading inferred messages. Headed to Hedgebrook For this very good reason, there will be no newsletter in March, but there’ll be much brewing on my return, including an Ancestry piece on a 19th century North Dakota murder and news about my next book project. See you then. Postcards from the Road Less Traveled: With a Little Help from Your (New) Friends Excerpt: Friendship is supposed to be a reciprocal relationship based on this: caring. Friends are friends because they share interests and affection. They support each other in times of need and applaud each other’s successes. If your friends have no curiosity about what makes your child with autism tick, and have no inclination to make even small accommodations to include him and you in their circle, it may be time to get yourself some new friends... **** Children’s Voice Excerpt: By learning you will teach; by teaching you will learn. This old Latin proverb embodies the notion that learning is circular, that we are all both teachers and learners for all of our lives. To be effective teachers, whether community professionals, instructors in the classroom, or parents in the home, we must continually learn from those we seek to guide. How can it be otherwise? Children are not prepackaged fare. No single method or tactic is a sure thing and achieving success is too often a matter of discovering what doesn’t work, as much as discovering what does. Teaching is more difficult than learning, observed German philosopher Martin Heidegger, because “what teaching calls for is this: to let learn.” As adults, we bear the burden; we must relinquish all our conceits and presumptions in order to let ourselves learn what we need to know to be able to teach a child... Circular learning acknowledges that true teaching isn’t only about putting information into the minds of our children. Rather, it is striving to bring something out of every learner. That ‘learner’ is not just the child; it’s you, and me and everyone with whom he will interact. The key to successful teaching in any venue is the recognition that the most meaningful learning is achieved in social context that prepares children for “real life...” Just Kids: Quick stuff, updates, tidbits: Familiarize yourself with President Obama’s positions on Americans with disabilities and autism at the following Autism Society of America links: Action on Autism to Expect from the New Administration Obama’s plan for supporting American with Autism Spectrum Disorders [PDF] *****
Four award-winning books for one affordable price! Ten Things Every Child with Autism Wishes You Knew remains one of the bestselling autism books of all time. 1001 Great Ideas, co-written by Autism-Asperger’s Digest editor Veronica Zysk, has become a staple for parents and educators alike, while Ten Things Your Student with Autism Wishes You Knew has helped countless educators effectively reach and teach their Children challenged by autism. Ms Notbohm’s newest book, The Autism Trail Guide: Postcard from the Road Less Traveled, is a cohesive collection of her best columns, featuring her trademark accessible writing and invaluable, empathetic advice. These are books that will make you laugh, cry, and most importantly, better understand and interact with people on the autism spectrum. Regular Price: $75.00 ***** Newsletter archive on my website: if you are new to our newsletter community, please visit the newsletter archive on my website and browse some popular past features here. January 2009: On My Soapbox: The Less the Merrier for 2009 // Winners quit, quitters win December 2008: On holiday – see you next year! November 2008: Interview: Autism and the Holidays October 2008: Childhood Obesity: is it abuse? // A-(scavenger) hunting we will go // Happily ever after, in real life September 2008: Children’s Voice, My Voice // Autism Speaks’ new School Community Tool Kit August 2008: Please read Michael Pollan’s In Defense of Food // New autism journal seeking submissions // At the Movies ****
Book excerpts on website Book excerpts on the website are all new as of September, a great opportunity to take a test drive: Ten Things Every Child with Autism Wishes You Knew Ten Things Your Student with Autism Wishes You Knew 1001 Great Ideas for Teaching and Raising Children with Autism Spectrum Disorders The Autism Trail Guide: Postcards from the Road Less Traveled If you’ve read my books and feel inclined to share your thoughts with others, please consider posting a review on my book pages at www.amazon.com. It’s easy to do and you don’t have to post your real name. Please forward this newsletter to anyone you feel might share an interest in our kids with autism. New subscribers can sign up at here.
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Search Me!
You Said It: Your favorite articles in 2008 A Readers’ Favorite: Three Little Words On My Soapbox: A 300-Calorie Mixed Message Headed to Hedgebrook – See you in April Quickstuff and Tidbits This Month’s reads Visit me on Facebook Congratulations to Bryce for making the Principal’s Honor Roll for the first semester of the school year. Now he’s off on his next Excellent Adventure: driver’s ed! Article links in this issue Ten Things Your Student with Autism Wishes You Knew ...and more
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